Welcome to the Nurses Section of the
Pediatric Cardiac Intensive Care Society Website

Adult Congenital Heart Disease (ACHD) Care Resources

This document contains a collection of bedside resources for the practitioner who is providing bedside care for adults with congenital heart disease (CHD). These patients may be hospitalized in either an adult or pediatric facility. The Care Resources include problem interventions and summaries of congenital heart defects with surgical interventions/repairs and potential/actual complications that may be encountered in adults who have grown up with CHD. These resources have been developed by a group of advance practice nurses from around the country with the goal of providing a quick, comprehensive overview of the bedside care for the nurse at the point of care. Each topic in this outline may be opened, printed, and taken to the bedside for quick reference or serve as a guideline for further investigation on the care or problems that are presented by the ACHD patient.

The advanced practice nurses who have participated in the development
of these Care Resources include:
Mary Rummell, MN, RN, CNS, CPNC
Clinical Nurse Specialist, Pediatric Cardiology
Sandy Staveski, MS, RN, PNP, CNS, CCRN
Cardiovascular ICU Nurse Practitioner

Loren Brown, BSN, RN, CCRN
Clinical Nursing Educator, Cardiovascular Catheterization Lab

Diana Arias, MSN, ARNP, FNP-C, CPN
Clinical Specialist, Cardiac Care Center

Kathryn Barrett, NP-C, RN, CCRN
Nurse Practitioner, Pediatric Cardiac Intensive Care Unit

Louise Callow RN, MSN, CPNP
Pediatric Cardiac Surgery Nurse Practitioner

Andrea Frederick, RN, NP
Nurse Practitioner, Adult Congenital Cardiology

Annette Haynes, MS, RN, CNS, CCRN
Cardiology Clinical Nurse Specialist

Joylyn Headings, FNP, RN, CCRN
Nurse Practitioner, Pediatric Cardiac Intensive Care Unit

Lindsey Katzmark, MSN, RN, APNP
Nurse Practitioner, Adult Congenital Heart Disease Program

Jo Ann Nieves, MSN, CPN, ARNP, PNP-BC
Nurse Practitioner, Cardiology

Nancy Rudd, MS, RN, CPNP-AC/PC
Nurse Practitioner, Pediatric Cardiology & Adult Congenital Heart Disease Program

Julie A. Shinn, MA, RN, CNS, CCRN, FAAN
Cardiovascular Clinical Nurse Specialist, Cardiovascular Surgery

Margaret Schroeder, MSN, RN, PNP-BC
Nurse Practitioner, Cardiovascular Surgery

Illustrations for the documents on congenital heart defects were provided by PedHeartResource. http://www.HeartPassport.com.  © Scientific Software Solutions, 2010. We appreciate their support of this project. Please visit the Scientific Software Solutions website to view their references on both care of the adult with congenital heart disease and congenital heart disease and repair. This link will take you to their website.

Links to additional electronic resources in the care of adults with congenital heart disease include:

Adult Congenital Heart Disease (ACHD) Care Resources
Table of Contents (click on topic to access)
Anticoagulation with Warfarin Loren Brown
Arrhythmias in ACHD Annette Haynes
Comfort Management Sandy Staveski
Discharge Guidelines Margaret Schroeder
Eisenmenger Syndrome & Cyanotic Congenital Heart Disease Nancy Rudd
Lindsey Fox
Postoperative Glycemic Control Mary Rummell
Pulmonary Hypertension Jo Ann Nieves
Annette Haynes
Pulmonic Ventricular Dysfunction Louise Callow
Pregnancy and Congenital Heart Disease Andrea Frederick
Annette Haynes
Congenital Heart Defects:
Atrioventricular Septal Defects Mary Rummell
Coarctation of the Aorta Jo Anne Nieves
Diana Arias
Congenitally Corrected Transposition of the Great Arteries Mary Rummell
Ebstein's Anomaly Andrea Frederick
Hypoplastic Left Heart Syndrome Louise Callow
Tetralogy of Fallot Andrea Frederick
Tricuspid Atresia Louise Callow
Transposition of the Great Arteries Mary Rummell
Truncus Arteriosus Sandra Staveski

Congenital Cardiac Nurses Association

Coventry Program

Society of Pediatric Cardiovascular Nurses

Northeast Pediatric Cardiology Nurses Association

Please let us know if these documents assist you in your care of the adult patient with congenital heart disease. Email your comments/suggestions to rummellm@ohsu.edu

©PCICS 2014